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Tuesday, 16 July 2013

"I don’t really need a wheelchair... but I would just love to be disabled" - Rare condition makes Chloe want £16k surgery to stop legs working

  • Made pretend splints and tried to get into accidents to end up disabled
  • Lets her understanding wife Danielle do all the chores around the home 
But wheelchair-using Column Idol winner says 'she is just being lazy'





Setting the wheels in motion ... Chloe Jennings-White
Barcroft Media

BEING stuck in a wheelchair and forced to wear leg braces is most people’s idea of hell – but not for Chloe Jennings-White.

The able-bodied 58-year-old longs to be PARAPLEGIC. She even wants to have totally unnecessary spinal surgery to stop her legs working.

Not even Chloe understood her strange, long-held desire until five years ago.

That is when she was diagnosed with Body Integrity Identity Disorder.

It is a very rare psychological condition. BIID makes sufferers feel they want to be disabled.

At home Chloe uses a wheelchair, even though she can walk. But that is not going far enough for her.

Speaking exclusively to The Sun, Chloe says: “My dream is to find a surgeon who will operate on my spine to stop my legs working.”

In 2010 she found an overseas doctor willing to cut her sciatic and femoral nerves, meaning she would lose all sensation in her legs, but at £16,000 it was way beyond her means.


ABLE-BODIED Chloe Jennings-White reveals rare condition BIID makes her want surgery to stop her walking

She says: “I’ll never be able to afford it, but I know I won’t regret it if I ever can, and I don’t know why it upsets people.

“It’s the same as a transsexual man having his penis cut off. It’s never coming back, but they know it’s what they want.”

Chloe has now bought a wheelchair on the internet and uses it to go about her everyday life.

She says: “When I first sat down in the wheelchair, it just felt so right. It felt like somewhere I belonged.

“Something in my brain tells me my legs are not supposed to work.

“Having any sensation in them just feels wrong.”

London-born Chloe first realised she was not like other kids when she was only four.

She had just visited her Aunt Olive in Thatcham, Berks, who had been in a bike accident and used leg braces.

Chloe recalls: “I wanted them too. I wondered why I wasn’t born needing them and felt something was wrong with me because I didn’t have them.”

She kept this weird wish to herself, but when she turned nine Chloe decided to do something about it.

First she avoided a polio vaccination at school.

“There was an epidemic and some kids ended up in leg braces,” she says.

“I dreamed I might end up like them, but didn’t.”



Roll play ... Chloe with her wheelchair even when preparing for a shower


Chloe then deliberately pedalled her bike off a 4ft acting stage at Hampstead Heath, landing on her neck.

She escaped with bruises, but was suddenly filled with terror over what she had done.

She did not want to die or damage anything other than her legs.

“It was a nine-year-old’s stupidness,” she says. “I could have broken my neck or died.”

Even so, she carried on flirting with danger, playing risky school sports and climbing trees.

She broke five bones between the ages of 12 and 16.

“I felt happy even just risking my legs,” she admits.

She did not dare tell her late parents, Harold and Marjory, who told her off every time she got injured.

In fact, terrified of telling anyone, she lived out her fantasy in secret, pretending to be disabled whenever she was home alone. “I’d bandage up my legs and make pretend splints out of an old metre-ruler and, my favourite, a piece of track from a model railway,” she says.

“I knew it was strange and others didn’t do it, but it was the closest I could get to how I was meant to be.”

Chloe kept these make-believe sessions to herself until she was 22, when she confessed to Ian, her first serious boyfriend. She says: “I’d moved in with Ian and he was so easy-going I decided to show him.

“He asked, ‘Why do you do that?’ I told him I liked it and he just put it down to me being odd. He knew I wasn’t like other people.”

The relationship ended 18 months later when research scientist Chloe, moved to California to work at Stanford University.

By 1991 she had moved to Utah and started skiing at local resorts — heading recklessly down the riskier runs in the hope of damaging her legs.

“It was perfect,” she says. “I sometimes crashed on purpose, but the lesson from my bike stopped me going too far.”

Then in June 2006, bisexual Chloe met future wife Danielle, now 44.

“We fell in love instantly,” she says. “On our second date she proposed and I said yes, although I hadn’t told her about my legs.”

A month before the wedding, in December 2006, a skiing accident really did leave Chloe with a back injury and a perfect excuse to get leg braces.

She admits: “I didn’t really need them, but I decided to use it as a reason to get some. I wouldn’t need my pretend splints any more.”



Flirting with danger ... Chloe Jennings-White skis in Utah, in hope a crash will crock her legs


Scared that Danielle would be shocked when the braces arrived, Chloe finally confessed all.

She says: “I told her it had been going on my whole life, and I couldn’t stop. She was shocked but vowed to stand by me when I told her it was the only way I could be happy.”

While looking for leg braces online, Chloe read about BIID for the first time.

“I knew it was me and it was a huge relief,” she says. “I wasn’t a freak — there are hundreds of others like me.”

Desperate to know for sure, she took part in a BIID research study with psychiatrist Michael First, who diagnosed her in spring 2008, recommending a wheelchair.

At first Chloe was sceptical, saying: “I wanted to really be a paraplegic. I didn’t want to pretend any more.”

She agreed to try and in July 2008 came home from work to a surprise from Danielle, who’d assembled a wheelchair they ordered together on the internet.

“It was magical,” she says. “It changed everything.

“But I was worried about what people would say because I didn’t need it. I decided to use it only in private.” She started living as a paraplegic at home, with Danielle left to do nearly all the household chores.

“Part of her wished I wasn’t in the wheelchair, but she knew it was the only thing that helped, so she played along,” says Chloe.

Even so, at times Danielle got annoyed.



On the road ... Chloe Jennings-White packs her wheelchair in boot of her car
Barcroft USA


“Mowing the lawn had always been my job and now she had to do it. She’d say: ‘You’re paraplegic now, so you can’t, can you? I’ll have to do it’.”

Then in July 2009, Chloe was involved in a 70mph car crash, but somehow survived with only cuts and bruises.

She says: “It was a golden opportunity because everyone knew about the crash but didn’t know about my miracle escape.

“I suddenly had a reason to use the wheelchair everywhere, even at work.”

She continued skiing and loved hiking where best friend Dave would push her along trails through the Utah mountains. “I didn’t feel bad because most wheelchair users, like people with multiple sclerosis, are able to get up sometimes,” she says.

“It’s just my chair gives me psychological relief, instead of physical.”

With a new-found confidence, Chloe began writing for BIID support group transabled.org and eventually told friends and family that she had BIID.

She received hate mail and even death threats via the web, but says all but two friends have been completely supportive.

“A woman I dated immediately before I met Danielle stopped our friendship completely, because she said she’d never understand it. I cut her off,” she says.

“I know it sounds crazy to people without BIID, but it’s what we feel. I don’t want to climb Mount Everest but some people do, and I don’t criticise them.




"Chloe is just being lazy" SUN Column Idol winner JESSICA LONG, a wheelchair user, says:


“As someone who has a disability and needs mobility aids and the help of others, I cannot understand why someone would VOLUNTEER for it.



Shocked ... Jessica Long



What Chloe fails to understand is that being in a wheelchair isn’t a disability. Using a wheelchair comes as a result of a disability.

I have no idea how Chloe’s wife even begins to comprehend this. Never mind her selfishness in trying to get into accidents with no regard for anyone who could be involved.

Comparing her “condition” to MS is just plain wrong – although sufferers may not need a wheelchair constantly, they need it at least part of the time.

I understand disability and I understand mental health issues. What I cannot understand is laziness.

This is a case of Chloe being lazy and wanting to be looked after by a poor sod who is too blinded by love to see she is being taken taken for a mug.”

Source: The sun

*Well, its hard for me to understand this "condition" that makes her want to be disabled. But one thing is for sure as the saying goes "you never know what you have until you lose it". By the time she becomes disabled, then she would know what's up...but then it would be too late.

Cheeky Big Brother’s Sallie goes topless during Marbella holiday

 

Sallie Axl sunbathes topless in Marbella
Busting to get a good tan ... Sallie Axl sunbathes topless in Marbella
matrixpictures.co.uk
The heavily-tattooed glamour girl, who was the first housemate to be booted out of BB this series, was snapped as she sunbathed in sunny Spain yesterday.
Sallie Axl topless in Marbella
Posing poolside ... Sallie Axl
matrixpictures.co.uk

Sallie, who is currently on holiday in Marbella with a group of girl pals, was seen posing poolside in just her bright yellow bikini bottoms, which sported the word smut, and drinking with a friend.
Sallie, 26, who was wearing a chunky Axl necklace and shades, later decided to lapdance the pool's outdoor shower.
Sallie Axl lapdances the shower in Marbella
Having a ball ... Sallie Axl lapdances the shower
matrixpictures.co.uk

And as she continued to cool off in the water, she showed off a rather cheeky amount of her bum.
Sallie Axl displays bum cheeks in Marbella
Cheeky ... Sallie Axl cools off in the shower
matrixpictures.co.uk
sun.co.uk

Chris Brown has his probation REVOKED .... could face 4 years imprisonment

Chris Brown
 
 

A US judge has revoked singer Chris Brown’s probation for beating Rihanna — meaning he could now face FOUR YEARS in prison.

Cops in Los Angeles decided to bring the 24-year-old's case back to court in the wake of a new hit-and-run charge that has been brought against him. The new case centres around a car accident in May where Brown is alleged to have left the scene without providing correct licence and insurance details.


Brown was sentenced to five years’ probation in 2009 after beating superstar RiRi and was also banned from contacting her.

But he will now have to go back into the dock in August to learn whether he will face jail for the same offence. He will not be kept in custody in the meantime.


Under the rules of his probation he was required to obey ALL laws without fail, which is why cops are taking a relatively minor offence so seriously.


#sun.co.uk

Vienna adire carnival...uniting the world through fashion

The event rally
The event was tagged ‘Culture and Trade Summit’ so both came together fine. As you can see my models are multi race, simply to send the message of unity not just to those at the show but beyond.”

That was Mr Omotunde Komolafe, the Chief Executive Officer of Kijiji Africa, a Europe-based fashion outfit founded to create events to celebrate the beauty and diversity of the African culture in general and that of Nigeria specifically, speaking on his first ever Nigerian Adire fashion event he organised in Vienna Austria, last month.

The event was done to promote the Nigerian heritage, he said, with the aim of bringing Nigeria on the world tourism map.

When Komolafe left the shores of Nigeria for Europe, he left with a dream. The dream was to unite the world through fashion. But most importantly, he swore to promote his African heritage in general and specifically his home country’s wherever the tides take him.

Twenty five years later, Komolafe is living his dreams. With a load of events promoting the African culture and uniting the world under his belt, he hosted the first ever Nigerian Adire fashion event in Austria, drawing a huge crowd across the world to see the beauty of the Nigerian people.

The event, which held in Vienna, was tagged Adire Carnival with the aim of promoting the handmade Adire fabric from western part of Nigeria which was visible throughout the event.

Speaking to the Nigerian Tribune few months before the event was hosted, the President, National Association of Nigerian Community Austria (NANCA), Mr Oluyemi Ogundele, said that the Nigerian community in Austria was highly impressed with the programme being that it was designed to showcase the rich cultural heritage of “our great country Nigeria and to foster the friendly relationship between Nigeria and our host country Austria.”

The event, which collaborated with the Nigeria Embassy Vienna, Museum of Ethnology Vienna and a host of other organisations, finally berthed in Welt Museum, Vienna on June 29, drawing Nigerians from across the globe, with the likes of the Ogirimadagbo of Ilodo–Ijebu, Oba Isiaka Olajide Ajede, leading the Ogun State delegation and Osun State governor, Mr Rauf

Aregebesola leading the Osun delegation, not to mention the Nollywood stars and other professionals who graced the event from Nigeria. The Nollywood stars included Odunlade Adekola, Bolaji Amusan (Mister Latin), Saudy Odus, Lagata and Bunmi Onabule.

Speaking on the event, Komolafe told the Nigerian Tribune that he organised the carnival, which had received the endorsement of the Nigerian Foreign Affairs Minister, Mr Gbenga Ashiru. He said he wanted the world to see that there was more to Nigeria aside the negative reports we hear abroad. “I want the world to see how cultured, beautiful and warm we are as a country. Apart from that, I wanted to put Nigeria on the tourism map of the world.



“My main purpose was to show the Africans and our European friends that our folk fabrics are as good as the western fabrics for urban wear design and as a result promote made in Nigeria garments. I am doing Adire bikini fashion show as part of the carnival and a little bit of fashion expo for Nigeria as part of the image building for Nigeria in Austria. This is the first time such an event will happen in Austria. I have sponsored their Gele Contest twice and this year, I decided to take my art few steps up with the Adire bikini.”

And judging from the outcome of the event, it seems he may have achieved his aim, especially as it regards the Adire promotion in Europe. Ogundele, the president of NANCA, wrote that “weeks after the event, people are still looking for Adire to buy. What a success. To God be the glory.”

As a founding member and the culture/exterior envoy of African Hungarian Union, Komolafe has been involved in promoting Nigeria in whatever capacity he found himself in. Previously, he founded Iroko Award 13 years ago with the aim of supporting the development of the relations between Africa and Hungary on one hand, and on the other, to emphasise those individual achievements, which serve the bilateral networking.

“As you know, the iroko in the West African Yoruba tradition is the symbol of greatness, one of the most characteristic and perhaps the most prominent tree species of Africa. Besides being the material of the family furniture, it provides shade and protection for those in need. This is why we chose the name for the award,” he said. He also intimated that the upcoming edition would have two of Nigerian Obas nominated for the Iroko award.

So what is next for the Kijiji man? He told the Nigerian Tribune that his next mega project is in the works. “My next mega project is Vienna-Lagos challenge. The rally will start in Vienna and end in Lagos, Nigeria. I drove to Nigeria in 2008 alone but now, I am doing the trip with close to 40 4x4 cars to Nigeria for the very first time in our history and as a result, we are putting Nigeria on the tourism map of extreme sports and travel pleasure.

“We are making arrangements with travel channel and few European channels to escort us with camera through the Sahara,” he said, adding that “Vienna-Lagos challenge is a rally for the everyday people looking for adventure and friendship. We are using this rally to boost friendship between Nigeria and Austria and at the same time promote tourism to the coastal city of Nigeria, Lagos. The participants of this rally will have the opportunity for the very first time to be part of history.”



#tribune

Driver kidnaps Chinese to avenge colleague’s unjustful sacking

 The suspects




A 33-year-old driver, Taiwo Aduloju, who was recently arrested for kidnapping a Chinese employee of ZTE Nigeria Ltd, has said he took the action to avenge the sacking of his colleague.

Aduloju was arrested alongside nine others-, Jimoh Olalere, Rotimi Segede, Michael Sunday, Chigozie Edeh, Adeyinka Jagbojagbo, Kabiru Jagbojagbo, Adeshina Mutiu, Ope Dada and Ufot Akan- in Ajah area of Lagos State.

Adeloju, a former driver at the company, said, “The head of the drivers, who we call Papa, was sacked unjustly by the company. He was given only N15, 000 as severance package. I decided that I would avenge this injustice meted out to Papa.”

The suspect said with the connivance of 14 others, he was able to kidnap a senior Chinese employee of the company, Mr. Kuang Yingjun. He said the plan was to get a ransom of N35m so that Papa would be given part of the money.

He said, “After I left the company in February, I met with Edeh at Obalende and we planned to kidnap a Chinese employee and demand ransom from the company. We needed an insider, so I involved Akan, who still works with the company. I put together a 13-man gang for the job.

One day, after Akan dropped off the Chinese at home, he called us and gave us the green light. Yingjun was in front of his house when we got there around 6.30pm. We grabbed him and drove off.

PUNCH Metro learnt that the kidnappers initially demanded N35m from the company but after negotiating with the family of the victim, they received N8.5m.

Adeloju said, “I gotN1.5m as my share. Unfortunately, I could not locate Papa so he did not get part of the money.”

Adeyinka, however denied complicity, saying he only helped the gang to prepare charms.

Akan also said he did not kidnap the victim but only gave the kidnappers information because they threatened to harm him if he did not.

PUNCH Metro learnt that the kidnappers were arrested after they kidnapped a cement dealer, Kingsley Ifeanyi, in Ajah .

According to police authorities, the second operation was planned by another member of the gang, Jimoh Olalere.

They called Ifeanyi pretending to be customers and when he went to meet with them, they kidnapped him.

The Commissioner of Police for the state command, Umar Manko, said the suspects were arrested through intelligence gathering. He said kidnapping was usually successful through the connivance of domestic employees.

He therefore warned members of the public to be careful when hiring workers and advised families of victims not to pay ransom but have faith in the police.